Week 36

I want to take a minute to let everyone know howe lucky I am to have the TEAM I have here both at home and at the hospital takin care of me. The Girls here are so supportive in working with me we have develop a good rhythm that seems to be working for us This is hard on them and they are being troopers in helping and supporting me in many different ways.

I am cherishing my time I have with them and making efforts to be present so that I can savor each moment with what time we do have. The best way I can explain it right now we are in trouble but not serious trouble that comes down the road, so we still have some time on our side. I am sure many of you would expect nothing less than this from the girls. The support team at the home is the first line they are living with me 24/7 and see it all, they are in the trenches with me daily an nightly and are fighting with me side by side and for that I most thankful for, this is not to overshadow all of your support from everyone out there which I greatly appreciate all the effort an support.

The one I want address is my Medical Team between my nurses at the infusion clinic who take care of me pretty much weekly now, I go every two weeks for Chemo and in between weeks I am getting fluids. To my doctors and nurse practitioners who are over seeing all aspects of my treatment and step in to push thing along as needed…. The most recent example was my appointment with Neurology, it has been recommended from multiple team members from physical therapy to my main doctors that it was urgent an imperative that I saw Neurology as fast as possible to address the Foot Drop situation we are experiences. Upon the first call to Neurology, they had be pushed me out to January for my appointment, Once my team in particular my main oncology Doctor found out she stepped in right away an made calls to get me push up so that Neurology was now looking for any available immediate appointment they could find as such we were able to get in this week to see Neurology.

Neurology Visit: my Neology doctor did an extensive review of my motor functions and mobility. It is still unclear as to why this is happening or what is causing the foot drop but it clear that it is a serious problem. She has ordered several test via blood work and 3 additional scans 2 MRI’s and an EMG (using electrical currents to test my nerves), these will happen throughout September an October at which point I will have a follow up with Neurology. The mobility of the foot is decreasing as time goes on, they have moved me from just using the cane to using my walker. I have also been official labeled as handicapped from this point forward as we get more information, I will post it but for now the foot is not working anymore we are running test to try to figure out the origin point and to make sure there are no tumors in the spine.